This article was downloaded by: [University of Tasmania] On: 14 November 2014, At: 02:32 Publisher: Routledge Informa Ltd Registered in England and Wales Registered Number: 1072954 Registered office: Mortimer House, 37-41 Mortimer Street, London W1T 3JH, UK
The American Journal of Bioethics Publication details, including instructions for authors and subscription information: http://www.tandfonline.com/loi/uajb20
Challenging Cases in Research Ethics a
b
Holly A. Taylor , Ellen Kuwana & Benjamin S. Wilfond
b
a
Johns Hopkins Berman Institute of Bioethics and Johns Hopkins Bloomberg School of Public Health b
Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute Published online: 17 Sep 2014.
To cite this article: Holly A. Taylor, Ellen Kuwana & Benjamin S. Wilfond (2014) Challenging Cases in Research Ethics, The American Journal of Bioethics, 14:10, 49-49, DOI: 10.1080/15265161.2014.947804 To link to this article: http://dx.doi.org/10.1080/15265161.2014.947804
PLEASE SCROLL DOWN FOR ARTICLE Taylor & Francis makes every effort to ensure the accuracy of all the information (the “Content”) contained in the publications on our platform. However, Taylor & Francis, our agents, and our licensors make no representations or warranties whatsoever as to the accuracy, completeness, or suitability for any purpose of the Content. Any opinions and views expressed in this publication are the opinions and views of the authors, and are not the views of or endorsed by Taylor & Francis. The accuracy of the Content should not be relied upon and should be independently verified with primary sources of information. Taylor and Francis shall not be liable for any losses, actions, claims, proceedings, demands, costs, expenses, damages, and other liabilities whatsoever or howsoever caused arising directly or indirectly in connection with, in relation to or arising out of the use of the Content. This article may be used for research, teaching, and private study purposes. Any substantial or systematic reproduction, redistribution, reselling, loan, sub-licensing, systematic supply, or distribution in any form to anyone is expressly forbidden. Terms & Conditions of access and use can be found at http:// www.tandfonline.com/page/terms-and-conditions
The American Journal of Bioethics, 14(10): 49, 2014 Copyright © Taylor & Francis Group, LLC ISSN: 1526-5161 print / 1536-0075 online DOI: 10.1080/15265161.2014.947804
Introduction
Challenging Cases in Research Ethics
Downloaded by [University of Tasmania] at 02:32 14 November 2014
Holly A. Taylor, Johns Hopkins Berman Institute of Bioethics and Johns Hopkins Bloomberg School of Public Health Ellen Kuwana, Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Research Institute Benjamin S. Wilfond, Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Research Institute This is a recurring feature, appearing in AJOB twice a year, that highlights challenging cases in research ethics along with several commentaries that offer insights and perspectives about how to approach the issues raised by the cases. The cases are based on consults received by members of the Clinical Research Ethics Consultation Working Group of the CTSA consortium; these cases have been presented at our quarterly conference call for group discussion. We have removed explicit identifiers from the case
presentations. The purpose of this feature is to stimulate discussion; therefore, the outcome of the actual case is not included. If you are interested in having a case presented to the Working Group and communicated via this feature in AJOB, please contact Ellen Kuwana, the submissions editor. You do not have to be a member of a CTSA to present a case. This feature is supported by UL1 TR000423 (Institute of Translational Health Sciences). &
Address correspondence to Ellen Kuwana, MS, Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Research Institute, 1900 Ninth Avenue, M/S JMB-6, Seattle, WA, 98101, USA. E-mail: [email protected]
ajob 49
The American Journal of Bioethics Publication details, including instructions for authors and subscription information: http://www.tandfonline.com/loi/uajb20
Challenging Cases in Research Ethics a
b
Holly A. Taylor , Ellen Kuwana & Benjamin S. Wilfond
b
a
Johns Hopkins Berman Institute of Bioethics and Johns Hopkins Bloomberg School of Public Health b
Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute Published online: 17 Sep 2014.
To cite this article: Holly A. Taylor, Ellen Kuwana & Benjamin S. Wilfond (2014) Challenging Cases in Research Ethics, The American Journal of Bioethics, 14:10, 49-49, DOI: 10.1080/15265161.2014.947804 To link to this article: http://dx.doi.org/10.1080/15265161.2014.947804
PLEASE SCROLL DOWN FOR ARTICLE Taylor & Francis makes every effort to ensure the accuracy of all the information (the “Content”) contained in the publications on our platform. However, Taylor & Francis, our agents, and our licensors make no representations or warranties whatsoever as to the accuracy, completeness, or suitability for any purpose of the Content. Any opinions and views expressed in this publication are the opinions and views of the authors, and are not the views of or endorsed by Taylor & Francis. The accuracy of the Content should not be relied upon and should be independently verified with primary sources of information. Taylor and Francis shall not be liable for any losses, actions, claims, proceedings, demands, costs, expenses, damages, and other liabilities whatsoever or howsoever caused arising directly or indirectly in connection with, in relation to or arising out of the use of the Content. This article may be used for research, teaching, and private study purposes. Any substantial or systematic reproduction, redistribution, reselling, loan, sub-licensing, systematic supply, or distribution in any form to anyone is expressly forbidden. Terms & Conditions of access and use can be found at http:// www.tandfonline.com/page/terms-and-conditions
The American Journal of Bioethics, 14(10): 49, 2014 Copyright © Taylor & Francis Group, LLC ISSN: 1526-5161 print / 1536-0075 online DOI: 10.1080/15265161.2014.947804
Introduction
Challenging Cases in Research Ethics
Downloaded by [University of Tasmania] at 02:32 14 November 2014
Holly A. Taylor, Johns Hopkins Berman Institute of Bioethics and Johns Hopkins Bloomberg School of Public Health Ellen Kuwana, Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Research Institute Benjamin S. Wilfond, Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Research Institute This is a recurring feature, appearing in AJOB twice a year, that highlights challenging cases in research ethics along with several commentaries that offer insights and perspectives about how to approach the issues raised by the cases. The cases are based on consults received by members of the Clinical Research Ethics Consultation Working Group of the CTSA consortium; these cases have been presented at our quarterly conference call for group discussion. We have removed explicit identifiers from the case
presentations. The purpose of this feature is to stimulate discussion; therefore, the outcome of the actual case is not included. If you are interested in having a case presented to the Working Group and communicated via this feature in AJOB, please contact Ellen Kuwana, the submissions editor. You do not have to be a member of a CTSA to present a case. This feature is supported by UL1 TR000423 (Institute of Translational Health Sciences). &
Address correspondence to Ellen Kuwana, MS, Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Research Institute, 1900 Ninth Avenue, M/S JMB-6, Seattle, WA, 98101, USA. E-mail: [email protected]
ajob 49
