Downloaded from http://spcare.bmj.com/ on November 22, 2015 - Published by group.bmj.com
Abstracts WA4
VOLUNTEERING IN PARTNERSHIP: A PUBLIC HEALTH APPROACH TO DELIVERING COMPASSIONATE CARE TO THOSE AT END OF LIFE AND THE FRAIL ELDERLY
Gail Wilson. St Luke’s Hospice, Plymouth, UK 10.1136/bmjspcare-2015-000906.4
Background Young people are often denied volunteering experiences with vulnerable dying people as this is considered to be ‘too distressing’. This project challenged this paternalistic attitude and trained young people to volunteer in the hospice, and other organisations to enhance the delivery of compassionate care. Aim 1. To promote dignity in care, for older people, people with dementia, those at end of life and those with learning disabilities. To reduce social isolation and the stigma associated with dying and being old. 2. To create new volunteering opportunities for young people to raise their awareness of the needs of the dying and the frail elderly. 3. Develop a model of best practice – that could be replicated in other parts of the country. Method A health promotion approach was used combining education and a community development, partnership approach. Results 120 Volunteers delivered over 3,650 hrs of volunteering activities, supporting individuals to engage in social activities. The project broke myths about having 16–18 year olds volunteering. The relationship between the hospice and the local community has strengthened and the employability skills for the young people taking part have increased. 16% of those who responded to an exit survey had gained full time employment, 9% had gained university places. Conclusion The personalisation of care for the frail elderly and those at end of life has increased by the use of volunteers. Young volunteers need mentoring. Staff needs support to feel confident to utilise the volunteers and let go of myths about risks.
OA5
EMPOWERING TEN CULTURALLY AND LINGUISTICALLY DIVERSE COMMUNITIES IN MELBOURNE, AUSTRALIA, TO ACCESS CULTURALLY RESPONSIVE PALLIATIVE CARE
Odette Waanders, Michael Kennedy, Michelle Paterson, Harriet Radermacher, Elena Petreska, Susan Timmins, Annmarie Ferguson. Palliative Care Victoria Inc., Australia 10.1136/bmjspcare-2015-000906.5
Background This project addresses low levels of awareness and use of palliative care among ten culturally and linguistically diverse (CALD) communities in Melbourne, Australia. Aim To increase awareness, understanding and use of palliative care among the Arabic speaking, Chinese, Croatian, Greek, Italian, Macedonian, Maltese, Polish, Turkish and Vietnamese communities in Melbourne and to strengthen the provision of culturally responsive palliative care. Method In July 2013 the palliative care and ethnic peak bodies initiated a two-year project with 10 ethnic communities (5 per year) to deliver peer education sessions about palliative care in community languages. Adjunct activities include community engagement, relationship-building, media, cultural responsiveness education for palliative care services, and evaluation. Results As at mid-July 2014, feedback from 837 participants (80% of 1050 attendees) at 37 community education sessions
A2
for 4 CALD communities indicated that 68% did not know about palliative care before the session. 90% had learnt new information, 90% had an intention to tell friends and family about palliative care and 90% thought palliative care was a good idea. Updated results will be provided. Conclusion Participatory and engagement strategies are needed to improve awareness of palliative care among CALD communities. The formation of community reference groups is a valuable strategy that respects community leadership, expertise and networks. The participation of CALD communities in tailoring education and information to meet specific cultural, spiritual and linguistic needs is essential. The participation of palliative care services in project activities is valued and strengthens relationships of trust and understanding.
OA6
TALKING ABOUT DEATH WON’T KILL YOU; INTRODUCING DIE-ALOGUES
Katherine Kortes-Miller. Hospice Northwest, Canada 10.1136/bmjspcare-2015-000906.6
Background Death holds a significant place in societies despite not being a direct or first-hand experience for many. Fewer people now die in their homes surrounded by family, and we have distanced ourselves from death by geography and the medicalisation of death. Our understanding of dying and death is influenced by the communities we live in. Aim Die-alogues is an initiative hosted by Hospice Northwest intended to support meaningful conversations about dying, death, life and living. The mission of Hospice Northwest is to support end-of-life care in our community. By engaging in open, easy and respectful discussions about death and dying ourselves, we can better prepare ourselves to care for others as they face their own dying and that of those they love. Methods Responding to an identified community need, we have partnered with community organisations including a music and dance studio, a leadership group and a research centre to facilitate this initiative. Our approach has been innovative and included a flash mob, Jeopardy games and various other strategies to facilitate and support community members’ discussions of living until we die. Results Evaluations are positive. Our community has requested more opportunities for Die-alogues to continue. This initiative will hopefully expand in our region including within neighbouring First Nations communities. Conclusion Our standing room only events demonstrate that our community wants to engage and be active participants in learning about dying and death and supporting one another. This presentation/poster will share some of the lessons learned from the Die-alogues community engagement process.
WA7
REFINING AND SHARING OUR METHODS – HOW TO RESEARCH THE PUBLIC HEALTH APPROACH TO PALLIATIVE CARE?
1
Joachim Cohen, 2Libby Sallnow, 3Carol Tishelman. 1End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University; 2St Joseph’s Hospice London and the University of Edinburgh, UK; 3Karolinska Institute, Stockholm, Sweden
10.1136/bmjspcare-2015-000906.7
According to the WHO, public health has a mandate to: 1) Assess and monitor the health of communities and populations SPCare 2015;5(Suppl 1):A1–A32
Downloaded from http://spcare.bmj.com/ on November 22, 2015 - Published by group.bmj.com
OA5 Empowering ten culturally and linguistically diverse communities in melbourne, australia, to access culturally responsive palliative care Odette Waanders, Michael Kennedy, Michelle Paterson, Harriet Radermacher, Elena Petreska, Susan Timmins and Annmarie Ferguson BMJ Support Palliat Care 2015 5: A2
doi: 10.1136/bmjspcare-2015-000906.5 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A2.2
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts WA4
VOLUNTEERING IN PARTNERSHIP: A PUBLIC HEALTH APPROACH TO DELIVERING COMPASSIONATE CARE TO THOSE AT END OF LIFE AND THE FRAIL ELDERLY
Gail Wilson. St Luke’s Hospice, Plymouth, UK 10.1136/bmjspcare-2015-000906.4
Background Young people are often denied volunteering experiences with vulnerable dying people as this is considered to be ‘too distressing’. This project challenged this paternalistic attitude and trained young people to volunteer in the hospice, and other organisations to enhance the delivery of compassionate care. Aim 1. To promote dignity in care, for older people, people with dementia, those at end of life and those with learning disabilities. To reduce social isolation and the stigma associated with dying and being old. 2. To create new volunteering opportunities for young people to raise their awareness of the needs of the dying and the frail elderly. 3. Develop a model of best practice – that could be replicated in other parts of the country. Method A health promotion approach was used combining education and a community development, partnership approach. Results 120 Volunteers delivered over 3,650 hrs of volunteering activities, supporting individuals to engage in social activities. The project broke myths about having 16–18 year olds volunteering. The relationship between the hospice and the local community has strengthened and the employability skills for the young people taking part have increased. 16% of those who responded to an exit survey had gained full time employment, 9% had gained university places. Conclusion The personalisation of care for the frail elderly and those at end of life has increased by the use of volunteers. Young volunteers need mentoring. Staff needs support to feel confident to utilise the volunteers and let go of myths about risks.
OA5
EMPOWERING TEN CULTURALLY AND LINGUISTICALLY DIVERSE COMMUNITIES IN MELBOURNE, AUSTRALIA, TO ACCESS CULTURALLY RESPONSIVE PALLIATIVE CARE
Odette Waanders, Michael Kennedy, Michelle Paterson, Harriet Radermacher, Elena Petreska, Susan Timmins, Annmarie Ferguson. Palliative Care Victoria Inc., Australia 10.1136/bmjspcare-2015-000906.5
Background This project addresses low levels of awareness and use of palliative care among ten culturally and linguistically diverse (CALD) communities in Melbourne, Australia. Aim To increase awareness, understanding and use of palliative care among the Arabic speaking, Chinese, Croatian, Greek, Italian, Macedonian, Maltese, Polish, Turkish and Vietnamese communities in Melbourne and to strengthen the provision of culturally responsive palliative care. Method In July 2013 the palliative care and ethnic peak bodies initiated a two-year project with 10 ethnic communities (5 per year) to deliver peer education sessions about palliative care in community languages. Adjunct activities include community engagement, relationship-building, media, cultural responsiveness education for palliative care services, and evaluation. Results As at mid-July 2014, feedback from 837 participants (80% of 1050 attendees) at 37 community education sessions
A2
for 4 CALD communities indicated that 68% did not know about palliative care before the session. 90% had learnt new information, 90% had an intention to tell friends and family about palliative care and 90% thought palliative care was a good idea. Updated results will be provided. Conclusion Participatory and engagement strategies are needed to improve awareness of palliative care among CALD communities. The formation of community reference groups is a valuable strategy that respects community leadership, expertise and networks. The participation of CALD communities in tailoring education and information to meet specific cultural, spiritual and linguistic needs is essential. The participation of palliative care services in project activities is valued and strengthens relationships of trust and understanding.
OA6
TALKING ABOUT DEATH WON’T KILL YOU; INTRODUCING DIE-ALOGUES
Katherine Kortes-Miller. Hospice Northwest, Canada 10.1136/bmjspcare-2015-000906.6
Background Death holds a significant place in societies despite not being a direct or first-hand experience for many. Fewer people now die in their homes surrounded by family, and we have distanced ourselves from death by geography and the medicalisation of death. Our understanding of dying and death is influenced by the communities we live in. Aim Die-alogues is an initiative hosted by Hospice Northwest intended to support meaningful conversations about dying, death, life and living. The mission of Hospice Northwest is to support end-of-life care in our community. By engaging in open, easy and respectful discussions about death and dying ourselves, we can better prepare ourselves to care for others as they face their own dying and that of those they love. Methods Responding to an identified community need, we have partnered with community organisations including a music and dance studio, a leadership group and a research centre to facilitate this initiative. Our approach has been innovative and included a flash mob, Jeopardy games and various other strategies to facilitate and support community members’ discussions of living until we die. Results Evaluations are positive. Our community has requested more opportunities for Die-alogues to continue. This initiative will hopefully expand in our region including within neighbouring First Nations communities. Conclusion Our standing room only events demonstrate that our community wants to engage and be active participants in learning about dying and death and supporting one another. This presentation/poster will share some of the lessons learned from the Die-alogues community engagement process.
WA7
REFINING AND SHARING OUR METHODS – HOW TO RESEARCH THE PUBLIC HEALTH APPROACH TO PALLIATIVE CARE?
1
Joachim Cohen, 2Libby Sallnow, 3Carol Tishelman. 1End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University; 2St Joseph’s Hospice London and the University of Edinburgh, UK; 3Karolinska Institute, Stockholm, Sweden
10.1136/bmjspcare-2015-000906.7
According to the WHO, public health has a mandate to: 1) Assess and monitor the health of communities and populations SPCare 2015;5(Suppl 1):A1–A32
Downloaded from http://spcare.bmj.com/ on November 22, 2015 - Published by group.bmj.com
OA5 Empowering ten culturally and linguistically diverse communities in melbourne, australia, to access culturally responsive palliative care Odette Waanders, Michael Kennedy, Michelle Paterson, Harriet Radermacher, Elena Petreska, Susan Timmins and Annmarie Ferguson BMJ Support Palliat Care 2015 5: A2
doi: 10.1136/bmjspcare-2015-000906.5 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A2.2
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
