HHS Public Access Author manuscript Author Manuscript
Cancer. Author manuscript; available in PMC 2017 August 15. Published in final edited form as: Cancer. 2016 August 15; 122(16): 2587–2594. doi:10.1002/cncr.30092.
Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer Katie A. Greenzang, MD, EdM1,2, Angel M. Cronin, MS2, and Jennifer W. Mack, MD, MPH1,2 1
Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, MA
2Dana-Farber
Cancer Institute, Boston, MA
Author Manuscript
Abstract Background—Parents of children with cancer desire information about late effects of treatment. We assessed parents’ preparedness for late effects at least 5 years after their child's diagnosis. Methods—We conducted a cross-sectional survey of all eligible parents of children with cancer between April 2004 and September 2005 at Dana-Farber/Boston Children's Cancer and Blood Disorders Center within a year of diagnosis, and administered a follow-up questionnaire at least 5 years later.
Author Manuscript
Results—66% of parents of children who were still living, and whom we were able to contact, completed the follow-up questionnaire (n=91/138). 77% (70/91) of respondents were parents of disease-free survivors; 23% (21/91) were parents of children with relapsed disease. Most parents felt well prepared for their child's oncology treatment (87%), but fewer felt prepared for future limitations experienced by their children (70%, p=0.003, McNemar's test) or for life after cancer (62%, p90%),” “very likely (75-90%),” “moderately likely (50-74%),” “somewhat likely (25-49%),” “unlikely (10-24%),” and “very unlikely (
Cancer. Author manuscript; available in PMC 2017 August 15. Published in final edited form as: Cancer. 2016 August 15; 122(16): 2587–2594. doi:10.1002/cncr.30092.
Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer Katie A. Greenzang, MD, EdM1,2, Angel M. Cronin, MS2, and Jennifer W. Mack, MD, MPH1,2 1
Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, MA
2Dana-Farber
Cancer Institute, Boston, MA
Author Manuscript
Abstract Background—Parents of children with cancer desire information about late effects of treatment. We assessed parents’ preparedness for late effects at least 5 years after their child's diagnosis. Methods—We conducted a cross-sectional survey of all eligible parents of children with cancer between April 2004 and September 2005 at Dana-Farber/Boston Children's Cancer and Blood Disorders Center within a year of diagnosis, and administered a follow-up questionnaire at least 5 years later.
Author Manuscript
Results—66% of parents of children who were still living, and whom we were able to contact, completed the follow-up questionnaire (n=91/138). 77% (70/91) of respondents were parents of disease-free survivors; 23% (21/91) were parents of children with relapsed disease. Most parents felt well prepared for their child's oncology treatment (87%), but fewer felt prepared for future limitations experienced by their children (70%, p=0.003, McNemar's test) or for life after cancer (62%, p90%),” “very likely (75-90%),” “moderately likely (50-74%),” “somewhat likely (25-49%),” “unlikely (10-24%),” and “very unlikely (
