original article

Patient versus parental perceptions about pain and disability in children and adolescents with a variety of chronic pain conditions Thomas R Vetter MD MPH1, Cynthia L Bridgewater BSN MSN2, Lee I Ascherman MD MPH1, Avi Madan-Swain PhD1, Gerald L McGwin Jr MS PhD1 TR Vetter, CL Bridgewater, LI Ascherman, A Madan-Swain, GL McGwin Jr. Patient versus parental perceptions about pain and disability in children and adolescents with a variety of chronic pain conditions. Pain Res Manag 2014;19(1):7-14.

Les perceptions des patients et des parents sur la douleur et l’incapacité chez les enfants et les adolescents atteints de diverses maladies chroniques

Background: Cross-informant variance is often observed in patient self-reports versus parent proxy reports of pediatric chronic pain and disability. Objective: To assess the relationship and merit of the child versus parent perspective. Methods: A total of 99 patients (eight to 17 years of age [mean 13.2 years]; 71% female, 81% Caucasian) and parents completed the Pediatric Pain Questionnaire and Functional Disability Inventory at their initial clinic visit. Patients’ and parents’ pain intensity and disability scores were analyzed using an intraclass correlation coefficient (ICC), Wilcoxon signed-rank test, Bland-Altman plot and Spearman’s correlation coefficient. The association between clinical/demographic variables and differences in patient/parent pain intensity and disability scores was assessed using multivariable regression. Results: There was significant agreement between patients’ self-reports and parents’ proxy reports of their child’s pain intensity (ICC=0.52; P

Patient versus parental perceptions about pain and disability in children and adolescents with a variety of chronic pain conditions.

Cross-informant variance is often observed in patient self-reports versus parent proxy reports of pediatric chronic pain and disability...
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