Editorial Editor Christine Walker Tel: +44 (0)20 8872 3154 Email: [email protected] Managing director Rhonda Oliver Senior editor Gary Bell Assistant editor Sophie Blakemore Acting assistant editor Jennifer Sprinks Head of production Fiona Maclean Senior production editor Julie Hickey Production editor Janet Perham Art directors Ken McLoone, Paul Swainson Designer Sujata Aurora Picture editor Phil Brecht Deputy picture editor Helen Jones Digital director John Day IT and new media manager Alex Oldfield Web editor Amanda Carter ADMINISTRATION Administration manager Helen Hyland Email: [email protected] Administration assistant Sandra Lynch BUSINESS UNIT Commercial director Tony O’Rourke PA to commercial director Kim Sanders Head of marketing Helen Sumner Deputy head of marketing Michelle Day Marketing executive Louise Gallagher Group educational projects manager Laura Downes Display advertisements Tel: +44 (0)20 8872 3123 Advertisement and sponsorship sales manager Neil Hobson Senior sponsorship and advertising specialist Julia Gomersall Advertisement and sponsorship executives Rachel Fisher, Kelly Smith Advertisement production executive Sally Gauntlett Classified advertisements Tel: +44 (0)20 8423 1333 Classified advertisement manager Andy McCallum Sales project specialist Freddie Collier Classified advertisement executives Mandy Croggon, Shona Gethin CONSULTANT EDITORS Doreen Crawford Senior lecturer in nursing and midwifery, De Montfort University, Leicester Annette Dearmun Divisional head of governance and nursing, Oxford University Hospitals NHS Trust EDITORIAL ADVISORY BOARD Antoinette Bewley Senior lecturer, Edge Hill University, Ormskirk Susan Chapman Consultant, Great Ormond Street Hospital for Children NHS Foundation Trust David Clarke Lecturer in nursing, Cardiff University Imelda Coyne Professor of children’s nursing and director of children’s research, Trinity College Dublin Mats Eriksson Associate professor, Örebro University Hospital, Sweden Huda Abu-Saad Huijer Professor of nursing science, American University of Beirut Regina Lai Tong Lee Associate professor, Hong Kong Polytechnic University, China Orla McAlinden Lecturer in nursing (children and young people), Queen’s University Belfast Toby Mohammed Head of practice development, NHS Greater Glasgow and Clyde Linda Shields Professor of tropical health nursing, James Cook University and Townsville Health Service District; honorary professor, Queensland University, Australia Fiona Smith RCN adviser in children’s and young people’s nursing Joanna Smith Senior lecturer in children’s nursing, University of Huddersfield Jocelyne Tourigny Professor and assistant director graduate programs, Ottowa, Canada Mark Whiting Nurse consultant, children with complex health needs, Hertfordshire Community NHS Trust NURSING CHILDREN AND YOUNG PEOPLE RCN Publishing Company, 59-65 Lowlands Road, Harrow-on-the-Hill, Middlesex HA1 3AW Nursing Children and Young People is indexed, abstracted and/or published online in the following media: Medline (Pubmed), CINAHL, BNI and Ovid ABC APPLICATION APPROVED 11,073 (Jan-Dec 2013) SUBSCRIPTION DEPARTMENT Royal College of Nursing Journal subscription department, Copse Walk, Cardiff Gate Business Park, Cardiff CF23 8XG. Tel: +44 (0)345 772 6100 Personal rates for print edition: from £66 a year in the UK and Europe, and from £121 a year in the rest of the world. Institutional print edition rates: from £446 a year. Email: [email protected] ©2014 RCN Publishing Company Ltd. All rights reserved. Not to be copied, transmitted or recorded in any way, in whole or part, without prior permission of the publishers. ISSN 2046-2336 (print). ISSN 2046-2034 (online) Printed by Stephens and George, Merthyr Tydfil Acceptance of an advertisement does not constitute a recommendation or an endorsement of a product or service, either by the RCN or RCN Publishing ncyp.rcnpublishing.com

Raising awareness of scoliosis Every June marks National Scoliosis Awareness Month, which highlights the growing need for education and early detection about scoliosis and its prevalence. It affects up to 3% of adolescents, some babies and young children, and is the most common spinal deformity. In our cover article this month (page 30), specialist nurse Cheryl Honeyman outlines how the condition can be diagnosed, which children are most likely to be affected and what to do if a child has the condition. As the article explains, early identification is vital to maximise effective treatment, support the child and family, and optimise holistic health. In a separate article (page 21), paediatric research sister Helen Smith explores nurses’ crucial role in conveying information sensitively to parents whose children are receiving palliative care. She argues that the way in which they involve families in decisions and care for the dying child will shape the experience they are about to face. The article features two case studies, including that of an eight-month-old

Early identification is vital to maximise effective treatment, support the child and family, and optimise holistic health

Jennifer Sprinks Acting assistant editor

baby who was diagnosed with spinal muscular atrophy type 1 at eight weeks. Also in this issue, in the second part of a series on the public health challenges for children, young people and nursing in the four countries of the UK, Nick Triggle assesses the current situation in Wales (page 8). The country’s child health statistics show that there is work to be done on a whole host of areas, including smoking and drinking, but obesity stands out above all others. The national average rate of obese and overweight children in Wales stands at 28%, higher than the average of 23% in England. But there is good news for public health in Wales. This time last year, Wales was in the grip of a measles outbreak, however, the latest figures show that 97% of children are getting the first dose of the MMR vaccination before their second birthdays. Public Health Wales director of nursing Rhiannon Beaumont-Wood warns nurses not to get complacent, but says the results show that the wider public health system works well when put under pressure.

Our mission Nursing Children and Young People aims to promote excellence in neonatal, infant, children’s and young people’s nursing practice. The journal is editorially independent and the opinions expressed are not those of the RCN, nor of any contributor’s employing organisation, unless specifically stated.

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