AWHONN
News & Views
Update on Newborn Screening
A Photo © Ivonne Wierink / thinkstockphotos.com
AWHONN member Emily Drake, PhD, RN, FAAN, serves on the Education and Training Task Force of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC). SACHDNC was established under federal law and is tasked with advising the U.S. Secretary of Health and Human Services regarding the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and standards for effectively reducing morbidity and mortality in newborns and children with, or at risk for, heritable disorders. The Department of Health and Human Services has updated its recommendations about the collection of newborn blood spots. Because
newborn screening now includes some very time-critical conditions (i.e., conditions that may require immediate treatment within the first few days of life to reduce risk of morbidity and mortality), new goals have been set to reduce delays and to improve timely diagnosis and treatment. These new recommendations will affect all entities and health care professionals involved in the newborn screening system, including birthing facilities, laboratories, nurses, pediatricians and other health care providers. According to a report published by the Association of Public Health Laboratories (2014), hospital staff will need to process specimens quickly and overcome mail delivery challenges to speedup transport time to the laboratory.
DOI: 10.1111/1751-486X.12212
http://nwh.awhonn.org
© 2015, AWHONN
281
Reference Association of Public Health Laboratories. (2014). NBS Timeliness Survey Report. Silver Spring, MD: Author.
Call for Abstracts AWHONN is soliciting abstracts for oral or poster presentations at the 2016 AWHONN Annual Convention in Grapevine, Texas, June 11-15, 2016. Presenting at the AWHONN convention ensures your informational session, research, case study or innovative program will be heard or viewed by a highly skilled, sophisticated and influential body of nurses. There are five submission options: • specialty session • research study (paper or poster) • evidence-based quality improvement project (paper or poster) • innovative program (paper or poster) • case study (poster) For information on criteria, further instructions and access to AWHONN’s electronic submission site, visit https://awhonn.confex. com/awhonn/2016/cfp.cgi. Questions can be directed to Carolyn Schick at cschick@awhonn. org. The deadline for submission is September 10, 2015.
H e l p i n g Wo m e n S t a y We l l Today we know more than ever about preventing disease and promoting health. For the very latest, read “Well Woman,” a clinical practice column appearing three times a year in Nursing for Women’s Health. READ IT TO KEEP YOUR PATIENTS—AND YOURSELF—FEELING HEALTHY, ACTIVE AND VIBRANT.
282
Nursing for Women’s Health
Volume 19
Issue 3
Illustration © Jane Kelly / thinkstockphotos.com
News & Views AWHONN
The following time frames have been set for obtaining the initial newborn screening specimen: (1) initial newborn screening specimens should be collected in the appropriate time frame for the newborn’s condition but no later than 48 hours after birth and (2) newborn screening specimens should be received at the laboratory as soon as possible, ideally within 24 hours of collection. Goals have also been set for the reporting of results. Presumptive positive results for timecritical conditions should be communicated immediately to a newborn’s health care provider but no later than 5 days of life. Presumptive positive results for all other conditions should be communicated to a newborn’s health care provider as soon as possible but no later than 7 days of life. All newborn screening tests should be completed within 7 days of life with results reported to the health care provider as soon as possible. SACHDNC encourages states to monitor their progress in achieving the recommendations and to make this information readily available to providers and the general public. Additional guidelines are expected later this year concerning quality improvement monitoring, consent and research using newborn blood spots. The full recommendations are available at www.hrsa.gov/advisorycommittees/ mchbadvisory/heritabledisorders/ reportsrecommendations/index.html. The March of Dimes is offering newborn screening quality awards for newborn screening systems that can serve as examples of best practice.
News & Views
Update on Newborn Screening
A Photo © Ivonne Wierink / thinkstockphotos.com
AWHONN member Emily Drake, PhD, RN, FAAN, serves on the Education and Training Task Force of the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC). SACHDNC was established under federal law and is tasked with advising the U.S. Secretary of Health and Human Services regarding the most appropriate application of universal newborn screening tests, technologies, policies, guidelines and standards for effectively reducing morbidity and mortality in newborns and children with, or at risk for, heritable disorders. The Department of Health and Human Services has updated its recommendations about the collection of newborn blood spots. Because
newborn screening now includes some very time-critical conditions (i.e., conditions that may require immediate treatment within the first few days of life to reduce risk of morbidity and mortality), new goals have been set to reduce delays and to improve timely diagnosis and treatment. These new recommendations will affect all entities and health care professionals involved in the newborn screening system, including birthing facilities, laboratories, nurses, pediatricians and other health care providers. According to a report published by the Association of Public Health Laboratories (2014), hospital staff will need to process specimens quickly and overcome mail delivery challenges to speedup transport time to the laboratory.
DOI: 10.1111/1751-486X.12212
http://nwh.awhonn.org
© 2015, AWHONN
281
Reference Association of Public Health Laboratories. (2014). NBS Timeliness Survey Report. Silver Spring, MD: Author.
Call for Abstracts AWHONN is soliciting abstracts for oral or poster presentations at the 2016 AWHONN Annual Convention in Grapevine, Texas, June 11-15, 2016. Presenting at the AWHONN convention ensures your informational session, research, case study or innovative program will be heard or viewed by a highly skilled, sophisticated and influential body of nurses. There are five submission options: • specialty session • research study (paper or poster) • evidence-based quality improvement project (paper or poster) • innovative program (paper or poster) • case study (poster) For information on criteria, further instructions and access to AWHONN’s electronic submission site, visit https://awhonn.confex. com/awhonn/2016/cfp.cgi. Questions can be directed to Carolyn Schick at cschick@awhonn. org. The deadline for submission is September 10, 2015.
H e l p i n g Wo m e n S t a y We l l Today we know more than ever about preventing disease and promoting health. For the very latest, read “Well Woman,” a clinical practice column appearing three times a year in Nursing for Women’s Health. READ IT TO KEEP YOUR PATIENTS—AND YOURSELF—FEELING HEALTHY, ACTIVE AND VIBRANT.
282
Nursing for Women’s Health
Volume 19
Issue 3
Illustration © Jane Kelly / thinkstockphotos.com
News & Views AWHONN
The following time frames have been set for obtaining the initial newborn screening specimen: (1) initial newborn screening specimens should be collected in the appropriate time frame for the newborn’s condition but no later than 48 hours after birth and (2) newborn screening specimens should be received at the laboratory as soon as possible, ideally within 24 hours of collection. Goals have also been set for the reporting of results. Presumptive positive results for timecritical conditions should be communicated immediately to a newborn’s health care provider but no later than 5 days of life. Presumptive positive results for all other conditions should be communicated to a newborn’s health care provider as soon as possible but no later than 7 days of life. All newborn screening tests should be completed within 7 days of life with results reported to the health care provider as soon as possible. SACHDNC encourages states to monitor their progress in achieving the recommendations and to make this information readily available to providers and the general public. Additional guidelines are expected later this year concerning quality improvement monitoring, consent and research using newborn blood spots. The full recommendations are available at www.hrsa.gov/advisorycommittees/ mchbadvisory/heritabledisorders/ reportsrecommendations/index.html. The March of Dimes is offering newborn screening quality awards for newborn screening systems that can serve as examples of best practice.
