Downloaded from http://spcare.bmj.com/ on December 29, 2017 - Published by group.bmj.com
Abstracts and bereavement. In Australia, 75% have not had end of life discussions, less than 10% have an advance care plan and 45% die without a will. The Dying To Know Day initiative encourages grassroots action to change these statistics by encouraging people to develop their death literacy, make their end of life plans, share these wishes with their families and get informed about end of life and death care options such as dying at home, home and community led funerals and natural burial. 2013 The GroundSwell Project successfully piloted and evaluated the concept and in 2014 the initiative grew significantly in size to 65 community events and over 120 personal actions across Australia. This presentation will provide an overview of this public health initiative and its outcomes over the past 2 years. Evaluation data indicates wide-spread support across a number of sectors of the community for example palliative care, funeral directors, artists and service clubs.
WA47
TWEETS, HASHTAGS AND PALLIATIVE CARE: A WORKSHOP FOR SOCIAL MEDIA NEWBIES LOOKING TO JOIN THE DIGITAL REVOLUTION
Kerrie Noonan. GroundSwell Project, Australia
Aim To review the way Victorian palliative care services have responded to government policies and strategic directions that are based upon health promoting palliative care. Method Thematic analysis of the annual reports of regional palliative care consortia over the past two four-year policy cycles. The eight regional consortia represent all palliative care services in the state of Victoria, and report their activities against the government’s strategic directions. Results Most palliative care services report some level of community engagement, but health promoting approaches are seldom seen as core business. Community engagement tends to be episodic or event-driven rather than sustained and sustainable. Most services express a desire to increase community engagement, but report that they struggle to do so in the face of the increasing demand for clinical service provision. Conclusion The understandings of health promotion and community development that inform the current community engagement activities of palliative care services need to be expanded. We suggest that this is more likely to happen if community groups become active in engaging the health services, including palliative care services, rather than by continuing to focus solely on building the services’ community engagement capacities. Some strategic opportunities for accomplishing this reorientation will be identified and illustrated as part of the presentation.
10.1136/bmjspcare-2015-000906.47
A recent article in the BMJ highlighted the role of social media has in changing the way we talk about and respond to death and dying. There are so many social media channels do you know which ones are best for communicating about your work? for networking with peers? participating in journal clubs? disseminating research with the international community? What about your local community– how do you increase engagement online to promote your work and events? How can you use social media to source and access interesting content and information about the public health approach? This workshop is designed as a beginner level and new user workshop and is suitable for anyone wanting to be more active in social media. It is designed specifically to focus on social media in relation to the end of life, palliative care and death care online communities. Bring your social media device – your phone, ipad or computer and we will do the following: 1. login and practice communicating with other users 2. develop and implement basic social media goals 3. apply strategies to increase your engagement and effectiveness on social media 4. learn simple ways to measure your reach. Workshop participants will have an opportunity to build confidence and be more effective communicators in social media. You then get to practice your newly learned skills for the remainder of the PHPC Conference.
OA48
ENGAGING COMMUNITIES: THE IMPACT OF A DECADE OF HEALTH PROMOTING PALLIATIVE CARE POLICY IN VICTORIA
Bruce Rumbold, Andrea Grindrod. La Trobe University, Australia 10.1136/bmjspcare-2015-000906.48
Background Health promoting palliative care began in Victoria, Australia and has been included in Victorian palliative care policy for over a decade. SPCare 2015;5(Suppl 1):A1–A32
OA49
DISADVANTAGED DYING: A COMPASSIONATE COMMUNITIES APPROACH FOR PEOPLE WITH INTELLECTUAL DISABILITY
Andrea Grindrod, Bruce Rumbold. La Trobe University, Australia 10.1136/bmjspcare-2015-000906.49
Background The literature on end of life care in the disability sector is sparse, despite deaths in residential disability homes becoming more common as the cohort of long-term residents ages. If people with disability are to have choice about their dying, both the knowledge and skills of their carers and systemic barriers that are embedded in legal structures, policy and service systems must be addressed. Aim In partnership with disability services we aim to build sustainable organisational capacity that will equip workers in residential disability homes to coordinate dying residents’ care according to those residents’ wishes. Method The attitudes of disability workers toward providing end-of-life care for their clients, and their experiences in doing so, have been surveyed. The survey identifies both the assets workers bring and the barriers they experience in providing endof-life care. Focus groups have explored these findings further in order to develop strategies that build workers’ capacity to provide end of life support for residents. Results Results from the survey, distributed to over 1000 staff members in north-west metropolitan Melbourne, reveal both the relational skills workers bring to their task and their lack of training for end of life care. These survey results, and the findings from subsequent focus groups, will be presented. The effectiveness of HPPC interventions being developed will also be discussed. Conclusion A Compassionate Communities approach enhances residential disability care workers’ capacity to provide end of life care for clients. Numerous structural barriers at the policy and service level still need to be overcome if people with disability are to have genuine options concerning how, and where, they die.
A15
Downloaded from http://spcare.bmj.com/ on December 29, 2017 - Published by group.bmj.com
WA47 Tweets, hashtags and palliative care: a workshop for social media newbies looking to join the digital revolution Kerrie Noonan BMJ Support Palliat Care 2015 5: A15
doi: 10.1136/bmjspcare-2015-000906.47 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A15.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
Abstracts and bereavement. In Australia, 75% have not had end of life discussions, less than 10% have an advance care plan and 45% die without a will. The Dying To Know Day initiative encourages grassroots action to change these statistics by encouraging people to develop their death literacy, make their end of life plans, share these wishes with their families and get informed about end of life and death care options such as dying at home, home and community led funerals and natural burial. 2013 The GroundSwell Project successfully piloted and evaluated the concept and in 2014 the initiative grew significantly in size to 65 community events and over 120 personal actions across Australia. This presentation will provide an overview of this public health initiative and its outcomes over the past 2 years. Evaluation data indicates wide-spread support across a number of sectors of the community for example palliative care, funeral directors, artists and service clubs.
WA47
TWEETS, HASHTAGS AND PALLIATIVE CARE: A WORKSHOP FOR SOCIAL MEDIA NEWBIES LOOKING TO JOIN THE DIGITAL REVOLUTION
Kerrie Noonan. GroundSwell Project, Australia
Aim To review the way Victorian palliative care services have responded to government policies and strategic directions that are based upon health promoting palliative care. Method Thematic analysis of the annual reports of regional palliative care consortia over the past two four-year policy cycles. The eight regional consortia represent all palliative care services in the state of Victoria, and report their activities against the government’s strategic directions. Results Most palliative care services report some level of community engagement, but health promoting approaches are seldom seen as core business. Community engagement tends to be episodic or event-driven rather than sustained and sustainable. Most services express a desire to increase community engagement, but report that they struggle to do so in the face of the increasing demand for clinical service provision. Conclusion The understandings of health promotion and community development that inform the current community engagement activities of palliative care services need to be expanded. We suggest that this is more likely to happen if community groups become active in engaging the health services, including palliative care services, rather than by continuing to focus solely on building the services’ community engagement capacities. Some strategic opportunities for accomplishing this reorientation will be identified and illustrated as part of the presentation.
10.1136/bmjspcare-2015-000906.47
A recent article in the BMJ highlighted the role of social media has in changing the way we talk about and respond to death and dying. There are so many social media channels do you know which ones are best for communicating about your work? for networking with peers? participating in journal clubs? disseminating research with the international community? What about your local community– how do you increase engagement online to promote your work and events? How can you use social media to source and access interesting content and information about the public health approach? This workshop is designed as a beginner level and new user workshop and is suitable for anyone wanting to be more active in social media. It is designed specifically to focus on social media in relation to the end of life, palliative care and death care online communities. Bring your social media device – your phone, ipad or computer and we will do the following: 1. login and practice communicating with other users 2. develop and implement basic social media goals 3. apply strategies to increase your engagement and effectiveness on social media 4. learn simple ways to measure your reach. Workshop participants will have an opportunity to build confidence and be more effective communicators in social media. You then get to practice your newly learned skills for the remainder of the PHPC Conference.
OA48
ENGAGING COMMUNITIES: THE IMPACT OF A DECADE OF HEALTH PROMOTING PALLIATIVE CARE POLICY IN VICTORIA
Bruce Rumbold, Andrea Grindrod. La Trobe University, Australia 10.1136/bmjspcare-2015-000906.48
Background Health promoting palliative care began in Victoria, Australia and has been included in Victorian palliative care policy for over a decade. SPCare 2015;5(Suppl 1):A1–A32
OA49
DISADVANTAGED DYING: A COMPASSIONATE COMMUNITIES APPROACH FOR PEOPLE WITH INTELLECTUAL DISABILITY
Andrea Grindrod, Bruce Rumbold. La Trobe University, Australia 10.1136/bmjspcare-2015-000906.49
Background The literature on end of life care in the disability sector is sparse, despite deaths in residential disability homes becoming more common as the cohort of long-term residents ages. If people with disability are to have choice about their dying, both the knowledge and skills of their carers and systemic barriers that are embedded in legal structures, policy and service systems must be addressed. Aim In partnership with disability services we aim to build sustainable organisational capacity that will equip workers in residential disability homes to coordinate dying residents’ care according to those residents’ wishes. Method The attitudes of disability workers toward providing end-of-life care for their clients, and their experiences in doing so, have been surveyed. The survey identifies both the assets workers bring and the barriers they experience in providing endof-life care. Focus groups have explored these findings further in order to develop strategies that build workers’ capacity to provide end of life support for residents. Results Results from the survey, distributed to over 1000 staff members in north-west metropolitan Melbourne, reveal both the relational skills workers bring to their task and their lack of training for end of life care. These survey results, and the findings from subsequent focus groups, will be presented. The effectiveness of HPPC interventions being developed will also be discussed. Conclusion A Compassionate Communities approach enhances residential disability care workers’ capacity to provide end of life care for clients. Numerous structural barriers at the policy and service level still need to be overcome if people with disability are to have genuine options concerning how, and where, they die.
A15
Downloaded from http://spcare.bmj.com/ on December 29, 2017 - Published by group.bmj.com
WA47 Tweets, hashtags and palliative care: a workshop for social media newbies looking to join the digital revolution Kerrie Noonan BMJ Support Palliat Care 2015 5: A15
doi: 10.1136/bmjspcare-2015-000906.47 Updated information and services can be found at: http://spcare.bmj.com/content/5/Suppl_1/A15.1
These include:
Email alerting service
Receive free email alerts when new articles cite this article. Sign up in the box at the top right corner of the online article.
Notes
To request permissions go to: http://group.bmj.com/group/rights-licensing/permissions To order reprints go to: http://journals.bmj.com/cgi/reprintform To subscribe to BMJ go to: http://group.bmj.com/subscribe/
