Editorial Consultant Editor Bridget Johnston Editor Craig Nicholson Commercial Executive Barry Maguire Editorial Manager Aysha Mendes Associate Publisher, Medical Education Tracy Cowan Associate Publisher Julie Smith Publisher Anthony Kerr Production Manager Jon Redmayne Circulation Director Sally Boettcher Chief Executive Officer Ben Allen Editorial enquiries: [email protected] Sales enquiries: [email protected]
Editorial Board AUSTRALIA Donna Drew Clinical Nurse Consultant, Paediatric Oncology/Palliative Care, Kids Cancer Centre, Sydney Children’s Hospital
Bridget Johnston Professor of Palliative and Supportive Care, Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, University of Nottingham
Jane Phillips Professor Palliative Nursing, The Cunningham Centre for Palliative Care Sydney, Sacred Heart Hospice, and The University of Notre Dame Australia
Daniel Kelly Royal College of Nursing Professor of Nursing Research, School of Nursing & Midwifery Studies, Cardiff University
BELARUS Anna Garcakova Director of the Belarusian Children’s Hospice BELGIUM Tine De Vlieger General Coordinator, Palliatieve Hulpverlening Antwerpen, University of Antwerp EIRE Philip Larkin Professor of Clinical Nursing (Palliative Care), School of Nursing, Midwifery and Health Systems and Our Lady’s Hospice Ltd, Health Sciences Centre, University College Dublin, Ireland Julie Ling Head of Strategic Development, LauraLynn Ireland’s Children’s Hospice, Dublin 18 HONG KONG Cecilia Chan Professor and Director, Centre of Behavioural Health, Pokfulam NORTHERN IRELAND Sonja McIlfatrick Reader, Institute of Nursing Research, University of Ulster; Head of Research, All Ireland Institute of Hospice & Palliative Care UGANDA Julia Downing Honorary Professor in Palliative Care, Makerere University, Kampala UNITED KINGDOM John Costello Senior Lecturer, University of Manchester
Diane Laverty Nurse Consultant in Palliative Care, St Joseph’s Hospice, London Carole Mula Macmillan Nurse Consultant in Palliative Care and Professional Lead Nurse for Division of Clinical Support Services, The Christe NHS Foundation Trust, Manchester Brian Nyatanga Senior Lecturer, University of Worcester Julie Skilbeck Senior Lecturer, Sheffield Hallam University Dion Smyth Lecturer-practitioner in Cancer and Palliative Care, Birmingham City University Anna-Marie Stevens Macmillan Nurse Consultant Cancer Palliative Care, The Royal Marsden NHS Foundation Trust, London UNITED STATES Jennifer Baird Doctoral Candidate, Department of Family Health Care Nursing, National Institute of Nursing Research NRSA Fellow, University of California, San Francisco Patricia Berry Associate Professor and Associate Director, University of Utah Hartford Center of Geriatric Nursing Excellence, University of Utah College of Nursing
UK Personal subscription rates Quarterly Direct Debit Annual Direct Debit Annual Credit Card 2yr Annual Credit Card 3yr Annual Credit Card
£44 £174 £183 £312 £440
Subscribe online: www.magsubscriptions.com, Subscribe by phone: +44 (0) 1722 716997
© © 2014 2013 MA MA Healthcare Healthcare Ltd Ltd
The International Journal of Palliative Nursing is published by MA Healthcare Ltd, St Jude’s Church, Dulwich Road, London SE24 0PB Tel: +44 (0)20 7738 5454 Websites: www.ijpn.co.uk
MA Healthcare Ltd is part of the Mark Allen Group
www.markallengroup.com
International Journal of Palliative Nursing is indexed on Medline, CINAHL, and the British Nursing Index © MA Healthcare Ltd, 2014. All rights reserved. No part of the International Journal of Palliative Nursing may be reproduced, stored in a retrieval system, or transmitted in any form or by any means electronic, mechanical, photocopying, recording, or otherwise without prior written permission of the Publishing Director. ISSN 1357-6321 Printed by Pensord Press Ltd, Blackwood, Gwent NP12 2YA The paper used within this publication has been sourced from Chain-of-Custody certified manufacturers, operating within international environmental standards, to ensure sustainable sourcing of the raw materials, sustainable production and to minimise our carbon footprint.
International Journal of Palliative Nursing 2014, Vol 20, No 4
Charitable funding: the need for transparency and accountability
W
orking at the only children’s hospice in Ireland has highlighted to me the essential role of fundraising in the provision of palliative care. Doubtless many palliative care services worldwide owe a huge debt of gratitude to the generosity of public donations. In an emotive area such as palliative care, and in particular palliative care for children, fundraisers can go to extraordinary lengths to raise money for their chosen cause. Although not specifically relating to hospices, Ireland has recently been blighted by several high-profile cases of voluntary organisations paying what are publicly perceived as exorbitant salaries to their senior managers and, in particular, chief executive officers. The post-holders targeted by the media all work in organisations that are the recipients of state financial support but also run fundraising programmes. What seems to have caught the interest of the Irish public is not only the level of the salaries that have been paid to senior staff but also that these have been ‘topped-up’ by the proceeds of fundraising activities. Further public outrage has ensued owing to the seeming lack of any contrition on the part of those in receipt of what are regarded as overly generous salaries. Indeed, many of those under scrutiny argue ❛We have an ethical that their salaries are competitive and commensurate imperative and with both their level of responsibility and the pay received by their colleagues working outside the a duty to those public sector. who give of their The attention generated by what has been seen as time and energy to a national scandal has led to a number of responses. ensure that funds The Irish government has appointed a charities regulator; in the absence of any statutory obligation, raised ... are spent many charities have scrambled to sign up to in a clear and voluntary codes of governance in an effort not to be accountable way tarred with the same brush; and the health services with a demonstrable have commenced work on a statement of compliance to ensure that state funding is spent appropriately. benefit to those for In the meantime the public has been left seeking whom we care.❜ assurances that their charity of choice is spending their hard-earned money in the right way. Palliative care services in most countries continue to rely on the generosity of the fundraising public. For those of us working in palliative care and in particular hospices it would be almost impossible to continue to provide services if the public lost trust and no longer made donations. Clarity, accountability, and transparency are therefore essential for all palliative care organisations that rely on fundraising to support their services. It is up to those of us working in these organisations to ensure that we are clear about how and why money is spent, that we seek value for money, and that we are able to demonstrate to the public our integrity and openness regarding how money is spent. We have an ethical imperative and a duty to those who give of their time and energy to ensure that funds raised through sometimes blood, often sweat, and frequently tears are spent in a clear and accountable way with a demonstrable benefit to those for whom we care. Il JPN
Julie Ling Head of Strategic Development, LauraLynn Ireland’s Children’s Hospice
159
onal Journal of Palliative Nursing. Downloaded from magonlinelibrary.com by 138.253.100.121 on December 12, 2015. For personal use only. No other uses without permission. . All rights r
Editorial Board AUSTRALIA Donna Drew Clinical Nurse Consultant, Paediatric Oncology/Palliative Care, Kids Cancer Centre, Sydney Children’s Hospital
Bridget Johnston Professor of Palliative and Supportive Care, Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, University of Nottingham
Jane Phillips Professor Palliative Nursing, The Cunningham Centre for Palliative Care Sydney, Sacred Heart Hospice, and The University of Notre Dame Australia
Daniel Kelly Royal College of Nursing Professor of Nursing Research, School of Nursing & Midwifery Studies, Cardiff University
BELARUS Anna Garcakova Director of the Belarusian Children’s Hospice BELGIUM Tine De Vlieger General Coordinator, Palliatieve Hulpverlening Antwerpen, University of Antwerp EIRE Philip Larkin Professor of Clinical Nursing (Palliative Care), School of Nursing, Midwifery and Health Systems and Our Lady’s Hospice Ltd, Health Sciences Centre, University College Dublin, Ireland Julie Ling Head of Strategic Development, LauraLynn Ireland’s Children’s Hospice, Dublin 18 HONG KONG Cecilia Chan Professor and Director, Centre of Behavioural Health, Pokfulam NORTHERN IRELAND Sonja McIlfatrick Reader, Institute of Nursing Research, University of Ulster; Head of Research, All Ireland Institute of Hospice & Palliative Care UGANDA Julia Downing Honorary Professor in Palliative Care, Makerere University, Kampala UNITED KINGDOM John Costello Senior Lecturer, University of Manchester
Diane Laverty Nurse Consultant in Palliative Care, St Joseph’s Hospice, London Carole Mula Macmillan Nurse Consultant in Palliative Care and Professional Lead Nurse for Division of Clinical Support Services, The Christe NHS Foundation Trust, Manchester Brian Nyatanga Senior Lecturer, University of Worcester Julie Skilbeck Senior Lecturer, Sheffield Hallam University Dion Smyth Lecturer-practitioner in Cancer and Palliative Care, Birmingham City University Anna-Marie Stevens Macmillan Nurse Consultant Cancer Palliative Care, The Royal Marsden NHS Foundation Trust, London UNITED STATES Jennifer Baird Doctoral Candidate, Department of Family Health Care Nursing, National Institute of Nursing Research NRSA Fellow, University of California, San Francisco Patricia Berry Associate Professor and Associate Director, University of Utah Hartford Center of Geriatric Nursing Excellence, University of Utah College of Nursing
UK Personal subscription rates Quarterly Direct Debit Annual Direct Debit Annual Credit Card 2yr Annual Credit Card 3yr Annual Credit Card
£44 £174 £183 £312 £440
Subscribe online: www.magsubscriptions.com, Subscribe by phone: +44 (0) 1722 716997
© © 2014 2013 MA MA Healthcare Healthcare Ltd Ltd
The International Journal of Palliative Nursing is published by MA Healthcare Ltd, St Jude’s Church, Dulwich Road, London SE24 0PB Tel: +44 (0)20 7738 5454 Websites: www.ijpn.co.uk
MA Healthcare Ltd is part of the Mark Allen Group
www.markallengroup.com
International Journal of Palliative Nursing is indexed on Medline, CINAHL, and the British Nursing Index © MA Healthcare Ltd, 2014. All rights reserved. No part of the International Journal of Palliative Nursing may be reproduced, stored in a retrieval system, or transmitted in any form or by any means electronic, mechanical, photocopying, recording, or otherwise without prior written permission of the Publishing Director. ISSN 1357-6321 Printed by Pensord Press Ltd, Blackwood, Gwent NP12 2YA The paper used within this publication has been sourced from Chain-of-Custody certified manufacturers, operating within international environmental standards, to ensure sustainable sourcing of the raw materials, sustainable production and to minimise our carbon footprint.
International Journal of Palliative Nursing 2014, Vol 20, No 4
Charitable funding: the need for transparency and accountability
W
orking at the only children’s hospice in Ireland has highlighted to me the essential role of fundraising in the provision of palliative care. Doubtless many palliative care services worldwide owe a huge debt of gratitude to the generosity of public donations. In an emotive area such as palliative care, and in particular palliative care for children, fundraisers can go to extraordinary lengths to raise money for their chosen cause. Although not specifically relating to hospices, Ireland has recently been blighted by several high-profile cases of voluntary organisations paying what are publicly perceived as exorbitant salaries to their senior managers and, in particular, chief executive officers. The post-holders targeted by the media all work in organisations that are the recipients of state financial support but also run fundraising programmes. What seems to have caught the interest of the Irish public is not only the level of the salaries that have been paid to senior staff but also that these have been ‘topped-up’ by the proceeds of fundraising activities. Further public outrage has ensued owing to the seeming lack of any contrition on the part of those in receipt of what are regarded as overly generous salaries. Indeed, many of those under scrutiny argue ❛We have an ethical that their salaries are competitive and commensurate imperative and with both their level of responsibility and the pay received by their colleagues working outside the a duty to those public sector. who give of their The attention generated by what has been seen as time and energy to a national scandal has led to a number of responses. ensure that funds The Irish government has appointed a charities regulator; in the absence of any statutory obligation, raised ... are spent many charities have scrambled to sign up to in a clear and voluntary codes of governance in an effort not to be accountable way tarred with the same brush; and the health services with a demonstrable have commenced work on a statement of compliance to ensure that state funding is spent appropriately. benefit to those for In the meantime the public has been left seeking whom we care.❜ assurances that their charity of choice is spending their hard-earned money in the right way. Palliative care services in most countries continue to rely on the generosity of the fundraising public. For those of us working in palliative care and in particular hospices it would be almost impossible to continue to provide services if the public lost trust and no longer made donations. Clarity, accountability, and transparency are therefore essential for all palliative care organisations that rely on fundraising to support their services. It is up to those of us working in these organisations to ensure that we are clear about how and why money is spent, that we seek value for money, and that we are able to demonstrate to the public our integrity and openness regarding how money is spent. We have an ethical imperative and a duty to those who give of their time and energy to ensure that funds raised through sometimes blood, often sweat, and frequently tears are spent in a clear and accountable way with a demonstrable benefit to those for whom we care. Il JPN
Julie Ling Head of Strategic Development, LauraLynn Ireland’s Children’s Hospice
159
onal Journal of Palliative Nursing. Downloaded from magonlinelibrary.com by 138.253.100.121 on December 12, 2015. For personal use only. No other uses without permission. . All rights r
